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Endometriosis UK – Metartec’s charity of the month

07 March 2018

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Why Endometriosis UK?

The reason for the choice is, my sister Kerry who has endometriosis. This is what she had to say about her experience -

Endometriosis is a debilitating disease and the pain is awful, it happens when lesions grow inside your reproductive organs, but it isn’t always just there, it can grow on your bowel & bladder. My uterus is completely covered.

It all started when I found out I had internal bleeding and it has now been about 20 years. After four laparoscopies to try and get rid of it, I’ve had no success meaning I’ve had to get a hysterectomy.

Firstly, there isn’t enough information about the condition which means doctors can take years to come up with a diagnosis. It’s sometimes put down to "period pains" but it's so much more than period pains.

I've been on a years’ worth of injections called Zoladex which puts you into early menopause. Sadly, this has side effects which have left me feeling sad, angry and suicidal. I'm in pain every day and on a bad day, I must take time off work. Being self-employed, this is not good because people see that you look physically ok, so they may not believe you, but the sad matter is, I have lost children because of this.

About Endometriosis UK?

Endometriosis (pronounced en- doh – mee – tree – oh – sis) is the name given to the condition where cells like the ones in the lining of the womb (uterus) are found elsewhere in the body.

Each month these cells react in the same way to those in the womb, building up and then breaking down and bleeding. Unlike the cells in the womb that leave the body as a period, this blood has no way to escape. The actual cause of endometriosis is unknown. There are several theories about the cause of endometriosis, but none fully explains why endometriosis occurs.

Endometriosis can affect all women and girls of a childbearing age, regardless of race or ethnicity. It may also lead to infertility, fatigue and bowel and bladder problems. One in ten women endure unrelenting pain that affects every aspect of their lives each day. That’s over 1.5 million women who desperately need support and information to help them understand this chronic condition.

The symptoms can vary in intensity from one woman to another, and the amount of endometriosis does not always correspond to the amount of pain and discomfort experienced. Some women with endometriosis experience symptoms while others do not.

The classic endometriosis symptoms include: Painful, heavy, or irregular periods, infertility, painful bowel movements and fatigue. 

Endometriosis UK provides vital support services, reliable information and a community for those affected by endometriosis. The charity hopes to improve the lives of people affected by endometriosis and work towards a future where it has the least possible impact on those living with the condition. Their mission is to help people overcome the impact endometriosis can have on individual lives, for everyone to have the right to fast, appropriate care, support and treatment and finally, for all of society to fully understand endometriosis and its impact and to be aware of the work of Endometriosis UK

The charity receives minimal funding for the work they do and are financed almost entirely through donations and annual membership subscriptions.

For more information, visit the Endometriosis UK website via - www.endometriosis-uk.org or their Facebook, Twitter and Instagram pages.